Questions For A Neurologist

The miraculous relief from the peripheral neuropathy lasted only for a short time, and tingling, numbness, and burning sensations have come back. Because this is just the beginning of the treatment with Taxol and I’d like to be on this med at least 6 months, I visited a neurologist and asked many questions.

Q1: Are there ways to prevent or cure peripheral neuropathy?

A: The prevention or cure is very difficult.  What we can do mostly is to reduce the pain and discomfort.

( It is so disappointing and I don’t want to believe it. ;-( )

Q2.  After the first infusion, surprisingly the troubles in the legs almost disappeared.  Is it because of the steroid?

A:  It could be.  But if you use the steroid for a long time, it may cause diabetes.

( Oh yes.  Two years ago I stopped the steroid because my sugar lever elevated. )

Q3. I found out there are breast cancer patients who use vitamin B6 shots the day before chemo and on the day of chemo.  What do you think about the shot?

A: Too little vitamin B6 is a problem but too much vitamin B6 could worsen peripheral neuropathy, too, though vitamin B12 is fine.

(Wow!  I was trying to take many pills of Vitamin B6!)

Q4.I read some articles that supported high doses (21mg) of Melatonin (a medicine for insomnia)prevented peripheral neuropathy. How about this?

A: 21mg is too much.  Take 3mg per day.

(Hmm….I am afraid that 3mg is not enough….)

Q5. How about Alpha-Lipoic Acid?

A:  This may work.  Try to take 300mg x2/day.

(Thank you!  Finally there is something possibly effective.)

Q6.  How about Acetyl-L-Carnitine or Glutamine?

A:  I think Alpha-Lipoic Acid is better, but have no objection for them.

(I found the name of Alpha-Lipoic Acid on the front page of some cancer magazine issued in this month, but I also read this medicine may afftect on thyroid.  I already have hypothyroid, so I am going to try Glutamine.)

 

I was told to see him again in four months.  Hopefully something will work and I can bring some good news to him. 🙂

 

One thought on “Questions For A Neurologist

  1. Kathy,
    You are such a warrior and I so admire your strength in all of these battles. I love the way you arm yourself with knowledge and keep asking those questions! I pray you will get more relief from your PN so that you can enjoy a good night’s sleep.
    Susan

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