Since today was supposed to be a day of the infusion, I went for a blood test yesterday. The phone call came from the hospital and I was told that today’s infusion had to be rescheduled to next week because the platelets number was 68, which was the lowest ever.
Last time the counts was 87, which was improved from 71 after postponing a week. Since the dose was reduced to 83%, I was hoping it would help stop lowering the counts, but the result was disappointing.
I wanted to get the 2nd opinion from Dr. Slamon to discuss this issue as well as many others, but since my appointment was canceled twice due to his operation, I haven’t heard anything from his office. I e-mailed to the office Monday and then the response said that probably I wouldn’t be able to see him until after the New Year’s Day. Another disappointment.
I will have a CT scan soon and find out if the new findings in the last CT are the sign of relapse of cancer or not, but regardless of the result, I may have to give up T-DM1 if I cannot halt losing the platelets.
Then what is next?
Perjeta is told to be very powerful. This new drug shows an excellent result when it is used with Herceptin and Taxotere. Yet Taxotere failed in my first regimen. Taxol, which is the same family as Taxotere and removed cancer when it was spread to the lungs, was halted because its side-effects of numbness and tingling could become permanent, according to Dr. Slamon’s advice.
A cancer friend I encountered through the blog told me she was going to start Xeloda with Herceptin and Perjeta. Maybe this combo will be my next one, too. I should ask her about this new drug. It is so great to be able to share the information with friends I got to know through the blog!